Recent research by patient charity Haemochromatosis UK has revealed that 1 in 10 people are at risk in Northern Ireland of genetic haemochromatosis. Most people have never heard of the condition. Yet it’s the most common genetic condition locally.

Untreated, the condition can lead to toxic iron overload, where the body is unable to process excess iron. The condition can cause liver disease, cancer, heart disease, chronic fatigue, diabetes, severe joint pain, sexual health issues, dementia and mental health issues.

This month, Haemochromatosis UK launches a £300,000 multi-channel TV, press, billboard, radio and digital campaign to raise awareness of genetic haemochromatosis (iron overload). Genesis Advertising created and funded the campaign with the support of a range of media and production partners. Homebuilder Hagan Homes provided additional support to fund subsidised genetic testing kits.

This major integrated campaign is running during November on TV, radio, in regional press and on social media. Billboards introducing the public to the condition are running across Northern Ireland and on local bus routes.

Market research undertaken earlier this year by Genesis revealed that 78% of people locally had not heard of the condition. The charity’s Chief Executive, Neil McClements said: “Early diagnosis saves lives – and every diagnosis starts with public awareness. This campaign is bringing people together to raise awareness of the symptoms of this common, but treatable, genetic condition.”

Treatment is simple and effective – a form of regular blood donation. The blood can be donated via Northern Ireland Blood Transfusion Service (NIBTS) and used to help people suffering from other conditions.

Moira-based Sean McKegney, 56, was diagnosed by chance in Spring 2022 when he saw his GP about another health issue : “I mentioned to my GP that I had been having more and more aches and pains that could not all be attributed to old football injuries. He suggested a general blood test which showed that my iron levels which were over ten-times higher than normal, at which point he suggested it might be genetic haemochromatosis, something I'd never heard of up to that point.”

He welcomes the charity’s awareness campaign and screening programme : “Genetic haemochromatosis was completely unknown to me or my family so I asked them to get checked out just in case but so far so good, no one else seems to have it. I'm at the start of my journey still awaiting some routine checks for my liver but so far the experience has been more an inconvenience, venesections every other week, rather than any real issue and am still learning about it.”

The awareness campaign is being supported by a postal home-based screening programme across Northern Ireland, delivered by Haemochromatosis UK. NI residents can order a subsidised health check kit online before 30th November by visiting https://www.haemochromatosis.org.uk/get-tested-for-genetic-haemochromatosis . A home testing kit is then delivered and returned by post. Once the kit is returned, within 2 weeks, the charity will write with results to everyone tested and their NHS GP, with information about their personalised test results and what to do next.

For more information about genetic haemochromatosis, or support following a diagnosis, visit www.ironoverload.org.uk.

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For all media enquiries please contact Janet McKay, PR Consultant, on 07968 817514 or email janet@janetmckaypr.com.

Notes for editors

1. Founded in 1990 by patients, The Haemochromatosis Society is the only national charity supporting people affected by genetic haemochromatosis. For further details : http://www.ironoverload.org.uk

2. A full range of briefing papers, statistics, logos, image and other media assets is available online here : https://www.haemochromatosis.org.uk/media-kit - campaign assets including TV, social and print awareness materials are downloadable from “06. Northern Ireland Campaign Nov 2023” sub-folder

3. Diagnosed early, haemochromatosis is manageable and not life-limiting. Treatment is simple and cost effective; primarily through regular blood donation. Untreated, the condition can lead to iron overload which can cause a range of illnesses including liver cancer, diabetes, cardiomyopathy, liver disease, chronic fatigue and severe joint pain.

4. For all media enquiries please contact Janet McKay, PR Consultant, on 07968 817514 or email janet@janetmckaypr.com

5. Haemochromatosis UK online

o Website : https://www.ironoverload.org.uk

o Twitter : @IronOverloadUK

o Facebook : https://www.facebook.com/haemochromatosisuk

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