This week sees the start of ‘Dotty Days’ - Lewy Body Dementia Awareness Week (June 24-30).

National charity The Lewy Body Society is calling for people to have a ‘Dotty Day’ in support of the work they do and to raise awareness of the disease - in the same month the organisation celebrates its 18th anniversary.

They want people to flood their social media with dots usings the hashtag #DottyDays, from wearing dotty outfits, making dotty cakes, holding a fundraising event or activity or purchasing a ‘Dotty Days’ wristband.

Dotty Days started because of former patron of the charity and Eastenders actor June, also known as Dot Cotton, as her husband lived with Lewy body dementia, both have sadly since passed away, but the awareness week is a legacy to her support.

The week aims to raise awareness of connecting the dots between diagnosis and post diagnosis support, care, treatment and research for those living with the disease and carers.

Jacqui Cannon, chief executive of The Lewy Body Society, based in Wigan, Greater Manchester, said: “We would love it if people shared their photos of their Dotty Days with us. We want the photos and fundraising to spark a conversation and educate people about the symptoms and challenges of Lewy body dementia and the importance of continued research.

“Dotty Days is a great way to symbolise the complex and multifaceted nature of the disease, helping to foster a sense of community and support for those affected. It is all about us connecting the dots.

“As we celebrate the Society’s 18th year, we remain grateful for all the support we have, and we will continue with our mission to educate the public, decision-makers, researchers and the medical profession about the reality of Lewy body dementia and its impact on families. So go dotty for Lewy body dementia.”

The Lewy Body Society is the only UK charity - and the first in Europe - dedicated to supporting people living with this form of dementia and carers.

Lewy body dementia is a complex and frequently misdiagnosed disease that affects memory, thinking, movement, sleep and behaviour.

It is the second most common type of neurodegenerative dementia in older people. At least 10-15% of all people who live with dementia have Lewy body dementia.

For more information about Lewy body dementia, fundraising or to show your support by buying a wristband visit www.lewybody.org

ENDS

Notes to Editors

For more information or interview contact Kirsty Day, kirsty@yellowjigsaw.co.uk /07941 605 925

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